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Patient perspectives on DMARD safety concerns in rheumatology trials: Results from inflammatory arthritis patient focus groups and OMERACT attendees discussion

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dc.contributor.authorAndersen, Kathleen M.
dc.contributor.authorKelly, Ayano
dc.contributor.authorLyddiatt, Anne
dc.contributor.authorBingham, Clifton O.
dc.contributor.authorBykerk, Vivian Patricia
dc.contributor.authorBatterman, Adena
dc.contributor.authorWestreich, Joan
dc.contributor.authorJones, Michelle K.
dc.contributor.authorCross, Marita J.
dc.contributor.authorBrooks, Peter
dc.contributor.authorMarch, Lyn
dc.date.accessioned2022-06-17T01:35:15Z
dc.date.issued2019
dc.date.updated2021-02-21T18:55:51Z
dc.description.abstractObjective. The Outcome Measures in Rheumatology (OMERACT) Safety Working Group is identifying core safety domains that matter most to patients with rheumatic disease. Methods. International focus groups were held with 39 patients with inflammatory arthritis to identify disease-modifying antirheumatic drug (DMARD) experiences and concerns. Themes were identified by pragmatic thematic coding and discussed in small groups by meeting attendees. Results. Patients view DMARD side effects as a continuum and consider the cumulative effect on day-to-day function. Disease and drug experiences, personal factors, and life circumstances influence tolerance of side effects and treatment persistence. Conclusion. Patients weigh overall adverse effects and benefits over time in relation to experiences and life circumstances.en_AU
dc.description.sponsorshipRC is supported by a core grant from the Oak Foundation (OCAY-13-309). COB/MKJ and this work supported in part by US National Institutes of Health NIH-AR072574 Core B, and the Camille Julia Morgan Arthritis Research and Education Fund.en_AU
dc.format.mimetypeapplication/pdfen_AU
dc.identifier.issn0315-162Xen_AU
dc.identifier.urihttp://hdl.handle.net/1885/267358
dc.language.isoen_AUen_AU
dc.publisherJournal of Rheumatology Publishing Co., Ltd.en_AU
dc.rights© 2019 The authorsen_AU
dc.sourceJournal of Rheumatologyen_AU
dc.subjectOMERACTen_AU
dc.subjectDRUG TOXICITYen_AU
dc.subjectRISKen_AU
dc.subjectPATIENT SATISFACTIONen_AU
dc.subjectCLINICAL TRIALSen_AU
dc.subjectDISEASE-MODIFYING ANTIRHEUMATIC DRUGSen_AU
dc.titlePatient perspectives on DMARD safety concerns in rheumatology trials: Results from inflammatory arthritis patient focus groups and OMERACT attendees discussionen_AU
dc.typeJournal articleen_AU
local.bibliographicCitation.issue9en_AU
local.bibliographicCitation.lastpage1172en_AU
local.bibliographicCitation.startpage1168en_AU
local.contributor.affiliationAndersen, Kathleen M., McGill Universityen_AU
local.contributor.affiliationKelly, Ayano, College of Health and Medicine, ANUen_AU
local.contributor.affiliationLyddiatt, Anne, Patient Partneren_AU
local.contributor.affiliationBingham, Clifton O., Johns Hopkins Universityen_AU
local.contributor.affiliationBykerk, Vivian Patricia, Hospital for Special Surgeryen_AU
local.contributor.affiliationBatterman, Adena, Hospital for Special Surgeryen_AU
local.contributor.affiliationWestreich, Joan, Hospital for Special Surgeryen_AU
local.contributor.affiliationJones, Michelle K., Johns Hopkins Universityen_AU
local.contributor.affiliationCross, Marita J., Royal North Shore Hospitalen_AU
local.contributor.affiliationBrooks, Peter, University of Melbourneen_AU
local.contributor.affiliationMarch, Lyn, Royal North Shore Hospitalen_AU
local.contributor.authoruidKelly, Ayano, u5924485en_AU
local.description.embargo2099-12-31
local.description.notesImported from ARIESen_AU
local.identifier.absfor110322 - Rheumatology and Arthritisen_AU
local.identifier.absseo920116 - Skeletal System and Disorders (incl. Arthritis)en_AU
local.identifier.ariespublicationu3102795xPUB4418en_AU
local.identifier.citationvolume46en_AU
local.identifier.doi10.3899/jrheum.181185en_AU
local.identifier.scopusID2-s2.0-85070241528
local.publisher.urlhttps://www.jrheum.org/en_AU
local.type.statusPublished Versionen_AU

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