Ageing-related experiences of adults with learning disability resident in rural areas: One Australian perspective

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Wark, Stuart
Canon-Vanry, Miranda
Ryan, Peta
Hussain, Rafat
Knox, Marie
Edwards, Meaghan
Parmenter, Marie
Parmenter, Trevor
Janicki, Matthew

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Blackwell Publishing Inc.

Abstract

Background: Access to support services in rural areas is known to be problematic both in Australia, andin other countries around the world, but themajority of research on the population of people ageingwithlearning disability has so far focussed on metropolitan residents. The authors report about select aspects of the lived experience of older adults with learning disability resident in rural locations in two states of Australia. Materials and Methods: This pilot project examined data drawn from 34 semistructured interviews conducted with 17 older adults and 17 carers. Responses were analysed for thematic areas. Results: It was observed that the capacity of certain rural areas to support meaningful choice-making was limited due to constraints of access to key services, including community-based aged care, generic and specialist health services, and both supported disability and aged-care residential options. Responses indicated that those living in both small- and medium-sized congregate care settings (such as group homes and residential aged-care facilities) hadmorelimited choices and only partial (if any) control over their living situation. Conclusion: An understanding of the needs of older adults with learning disability resident in rural areas is important to ensure that both aged-care and disability support structures are built on individuals’ needs.

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British Journal of Learning Disabilities

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Restricted until

2037-12-31