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A call for global action for rare diseases in Africa

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Date

2020

Authors

Baynam, G
Groft, Stephen
van der Westhuizen, Francois H.
Gassman, Safiyya D.
du Plessis, Kelly
Coles, Emily P.
Selebatso, Eda
Selebatso, Moses
Gaobinelwe, Boikobo
Selebatso, Tebogo

Journal Title

Journal ISSN

Volume Title

Publisher

Nature Publishing Group

Abstract

The 11th International Conference on Rare Diseases and Orphan Drugs (ICORD), South Africa, included the Africa-Rare initiative launch and facilitated multi-stakeholder engagement in the challenges facing, and opportunities for, Africans living with rare diseases. The following ICORD Global Call to Action, developed in collaboration with the International Rare Diseases Research Consortium, synthesizes the outcomes of the deliberations and emphasizes the international collaborative efforts required to address the global effects of rare diseases on public health.

Description

Keywords

Citation

URI

http://hdl.handle.net/1885/294856

Collections

ANU Research Publications

Source

Nature Genetics

Type

Journal article

Book Title

Entity type

Access Statement

License Rights

DOI

10.1038/s41588-019-0552-2

Restricted until

2099-12-31

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s41588-019-0552-2.pdf (790.19 KB)

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