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Supporting autonomy of nursing home residents with dementia in the informed consent process

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dc.contributor.authorBeattie, Elizabeth
dc.contributor.authorO'Reilly, Maria
dc.contributor.authorFetherstonhaugh, Deirdre
dc.contributor.authorMcMaster, Mitchell
dc.contributor.authorMoyle, Wendy
dc.contributor.authorFielding, Elaine
dc.date.accessioned2019-10-17T03:45:09Z
dc.date.issued2018
dc.date.updated2019-12-19T06:58:17Z
dc.description.abstractIn studies involving people with dementia, researchers have historically defaulted to seeking consent from a proxy, the assumption being that people with dementia are unable to provide their own informed consent. This choice denies people with dementia a voice in the consent process, thus disregarding their autonomy and agency. Recently, other options for improving the consent process have been explored.
dc.description.sponsorshipThe authors acknowledge funding support of the Dementia Collaborative Research Centre: Carers and Consumers, sited at the School of Nursing, Queensland University of Technology, and a part of the Dementia Initiative of the Commonwealth of Australia. Additional support was provided by the Aged Care Accreditation & Standards Agency.en_AU
dc.format.mimetypeapplication/pdfen_AU
dc.identifier.issn1471-3012en_AU
dc.identifier.urihttp://hdl.handle.net/1885/177025
dc.language.isoen_AUen_AU
dc.publisherSAGE Publications
dc.rights© The Author(s) 2018
dc.sourceDementia
dc.titleSupporting autonomy of nursing home residents with dementia in the informed consent process
dc.typeJournal article
local.bibliographicCitation.issue7-8
local.bibliographicCitation.lastpage12en_AU
local.bibliographicCitation.startpage1en_AU
local.contributor.affiliationBeattie, Elizabeth, Queensland University of Technologyen_AU
local.contributor.affiliationO'Reilly , Maria , Dementia Centre of Research Collaborationen_AU
local.contributor.affiliationFetherstonhaugh, Deirdre, La Trobe Universityen_AU
local.contributor.affiliationMcMaster, Mitchell, College of Health and Medicine, ANUen_AU
local.contributor.affiliationMoyle, Wendy, Griffith Universityen_AU
local.contributor.affiliationFielding, Elaine, Queensland University of Technologyen_AU
local.contributor.authoruidMcMaster, Mitchell, u5993050en_AU
local.description.embargo2037-12-31
local.description.notesImported from ARIESen_AU
local.identifier.absfor111708 - Health and Community Servicesen_AU
local.identifier.absfor111718 - Residential Client Careen_AU
local.identifier.absfor111702 - Aged Health Careen_AU
local.identifier.absseo920502 - Health Related to Ageingen_AU
local.identifier.absseo920410 - Mental Healthen_AU
local.identifier.absseo920112 - Neurodegenerative Disorders Related to Ageingen_AU
local.identifier.ariespublicationu1067127xPUB26en_AU
local.identifier.citationvolume18
local.identifier.doi10.1177/1471301218761240en_AU
local.identifier.scopusID2-s2.0-85043335586
local.publisher.urlhttps://au.sagepub.com/en-gb/oce/homeen_AU
local.type.statusPublished Versionen_AU

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