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The POMONA-ESP project methodology: Collecting data on health indicators for people with intellectual developmental disorders

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Folch, A; Martinez-Leal, Rafael; Vicens, p; Irazábal, Marcia; Muñoz-Lorente, Silvia; Salvador-Carulla, Luis; Rovira, L; Orejuela, C; Cortés, M.J

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People with intellectual developmental disorders have significant health disparities and a lack of proper attention to their health needs. They have been underrepresented in scientific research, and very few studies have been carried out using a representative randomized sample. The aim of this study was to describe the methods used in the POMONA‐ESP project to recruit a representative and randomized sample of participants with intellectual developmental disorders.

dc.contributor.authorFolch, A
dc.contributor.authorMartinez-Leal, Rafael
dc.contributor.authorVicens, p
dc.contributor.authorIrazábal, Marcia
dc.contributor.authorMuñoz-Lorente, Silvia
dc.contributor.authorSalvador-Carulla, Luis
dc.contributor.authorRovira, L
dc.contributor.authorOrejuela, C
dc.contributor.authorCortés, M.J
dc.date.accessioned2019-11-25T01:59:41Z
dc.identifier.issn1360-2322
dc.identifier.urihttp://hdl.handle.net/1885/186562
dc.description.abstractPeople with intellectual developmental disorders have significant health disparities and a lack of proper attention to their health needs. They have been underrepresented in scientific research, and very few studies have been carried out using a representative randomized sample. The aim of this study was to describe the methods used in the POMONA‐ESP project to recruit a representative and randomized sample of participants with intellectual developmental disorders.
dc.description.sponsorshipThe POMONA-ESP project was funded by the Fondo de Investigación Sanitaria (FIS) (PI12/01237) (2013–2016) from the Instituto de Salud Carlos III (ISCIII)—Ministry of Economy and Competitiveness of the State General Administration, Spain; and partially funded by Fundació Port Aventura.
dc.format.mimetypeapplication/pdf
dc.language.isoen_AU
dc.publisherWiley
dc.rights© 2018 John Wiley & Sons Ltd
dc.sourceJournal of Applied Research in Intellectual Disabilities
dc.titleThe POMONA-ESP project methodology: Collecting data on health indicators for people with intellectual developmental disorders
dc.typeJournal article
local.description.notesImported from ARIES
local.identifier.citationvolume32
dc.date.issued2019
local.identifier.absfor111714 - Mental Health
local.identifier.absfor111711 - Health Information Systems (incl. Surveillance)
local.identifier.ariespublicationu3102795xPUB284
local.publisher.urlhttps://www.wiley.com/en-gb
local.type.statusPublished Version
local.contributor.affiliationFolch, A, Fundació Villablanca, IISPV, Universitat Rovira i Virgili
local.contributor.affiliationMartinez-Leal, Rafael, Fundación Villablanca
local.contributor.affiliationVicens, p, Universitat Rovira i Virgili,
local.contributor.affiliationIrazábal, Marcia, Universitat de Barcelona
local.contributor.affiliationMuñoz-Lorente, Silvia, Plena Inclusión
local.contributor.affiliationSalvador-Carulla, Luis, College of Health and Medicine, ANU
local.contributor.affiliationRovira, L, Fundació Villablanca, IISPV, Universitat Rovira i Virgili
local.contributor.affiliationOrejuela, C, Fundació Villablanca, IISPV, Universitat Rovira i Virgili
local.contributor.affiliationCortés, M.J, Fundació Villablanca, IISPV, Universitat Rovira i Virgili
local.description.embargo2037-12-31
local.bibliographicCitation.issue1
local.bibliographicCitation.startpage15
local.bibliographicCitation.lastpage22
local.identifier.doi10.1111/jar.12497
local.identifier.absseo920204 - Evaluation of Health Outcomes
local.identifier.absseo920410 - Mental Health
dc.date.updated2019-05-19T08:20:49Z
local.identifier.scopusID2-s2.0-85050470341
CollectionsANU Research Publications

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