Countering ‘the moral science of biopolitics’: Understanding hepatitis C treatment ‘non-compliance’ in the antiviral era

Abstract

Although new hepatitis C treatments are a vast improvement on older, interferon-based regimens, there are those who have not taken up treatment, as well as those who have begun but not completed treatment. In this article, we analyse 50 interviews conducted for an Australian research project on treatment uptake. We draw on Berlant’s (2007, Critical Inquiry, 33) work on ‘slow death’ to analyse so-called ‘non-compliant’ cases, that is, those who begin but do not complete treatment or who do not take antiviral treatment as directed. Approached from a biomedical perspective, such activity does not align with the neoliberal values of progress, self-improvement and rational accumulation that pervade health discourses. However, we argue that it is more illuminating to understand them as cases in which sovereignty and agency are neither simplistically individualised nor denied, and where ‘modes of incoherence, distractedness, and habituation’ are understood to co-exist alongside ‘deliberate and deliberative activity […] in the reproduction of predictable life’ (Berlant, 2007, p. 754). The analysed accounts highlight multiple direct and indirect forces of attrition and powerfully demonstrate the socially produced character of agency, a capacity that takes shape through the constraining and exhausting dynamics of life in conditions of significant disadvantage. Show more