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Impact of endometriosis on women’s lives: a qualitative study

Moradi, Maryam; Parker, Melissa; Sneddon, Anne; Lopez, Violeta; Ellwood, David

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BACKGROUND This study aimed to explore women's experiences of the impact of endometriosis and whether there are differences across three age groups. METHODS A qualitative descriptive design was conducted using semi-structured focus group discussions with 35 Australian women with endometriosis, in three age groups. All tape-recorded discussions were transcribed verbatim and read line by line to extract meaningful codes and categories using NVivo 9 software through a thematic analysis approach....[Show more]

dc.contributor.authorMoradi, Maryam
dc.contributor.authorParker, Melissa
dc.contributor.authorSneddon, Anne
dc.contributor.authorLopez, Violeta
dc.contributor.authorEllwood, David
dc.date.accessioned2015-12-23T00:47:14Z
dc.date.available2015-12-23T00:47:14Z
dc.identifier.issn1472-6874
dc.identifier.urihttp://hdl.handle.net/1885/95176
dc.description.abstractBACKGROUND This study aimed to explore women's experiences of the impact of endometriosis and whether there are differences across three age groups. METHODS A qualitative descriptive design was conducted using semi-structured focus group discussions with 35 Australian women with endometriosis, in three age groups. All tape-recorded discussions were transcribed verbatim and read line by line to extract meaningful codes and categories using NVivo 9 software through a thematic analysis approach. Categories were then clustered into meaningful themes. RESULTS Participants' ages ranged from 17 to 53 years and had a history of 2 to 40 years living with endometriosis, with an average delay time to diagnosis of 8.1 years. Two main themes emerged: (1) experiences of living with endometriosis, and (2) impact of endometriosis on women's lives, with 14 discrete categories. The results showed similarities and differences of the impact between the three age groups. The most highlighted impacts were on marital/sexual relationships, social life, and on physical and psychological aspects in all three age groups, but with different orders of priority. Education was the second most highlighted for the 16-24 years, life opportunities and employment for the 25-34 years; and financial impact for those 35 years and above. CONCLUSIONS Our findings show that endometriosis impacts negatively on different aspects of women's lives. A better understanding of these findings could help to decrease the negative impact of endometriosis by guiding service delivery and future research to meet more effectively the needs of women and teenagers with this condition.
dc.publisherBioMed Central
dc.rights© Moradi et al.; licensee BioMed Central Ltd. 2014 This article is published under license to BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://​creativecommons.​org/​licenses/​by/​4.​0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. The Creative Commons Public Domain Dedication waiver (http://​creativecommons.​org/​publicdomain/​zero/​1.​0/​) applies to the data made available in this article, unless otherwise stated.
dc.sourceBMC Women's Health
dc.subjectadaptation, psychological
dc.subjectadolescent
dc.subjectadult
dc.subjecteducation
dc.subjectemployment
dc.subjectfemale
dc.subjecthumans
dc.subjectinterpersonal relations
dc.subjectmarriage
dc.subjectmiddle aged
dc.subjectqualitative research
dc.subjectsexual behavior
dc.subjectyoung adult
dc.subjectendometriosis
dc.subjectquality of life
dc.titleImpact of endometriosis on women’s lives: a qualitative study
dc.typeJournal article
local.description.notesImported from ARIES
local.identifier.citationvolume14
dc.date.issued2014-10-04
local.identifier.absfor111400
local.identifier.ariespublicationU3488905xPUB4774
local.publisher.urlhttp://www.biomedcentral.com/
local.type.statusPublished Version
local.contributor.affiliationMoradi, Maryam, College of Medicine, Biology and Environment, CMBE John Curtin School of Medical Research, JCSMR General, The Australian National University
local.contributor.affiliationParker, Melissa, Canberra Hospital, Australia
local.contributor.affiliationSneddon, Anne, School of Medicine, Australia
local.contributor.affiliationLopez, Violeta, National University of Singapore, Singapore
local.contributor.affiliationEllwood, David, College of Medicine, Biology and Environment, CMBE ANU Medical School, ANU Medical School, The Australian National University
local.identifier.essn1472-6874
local.bibliographicCitation.issue1
local.bibliographicCitation.startpage123
local.bibliographicCitation.lastpage12
local.identifier.doi10.1186/1472-6874-14-123
dc.date.updated2016-02-24T10:06:44Z
local.identifier.scopusID2-s2.0-84908071278
local.identifier.thomsonID000342781800001
CollectionsANU Research Publications

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