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Challenges in providing end-of-life care for people with intellectual disability: Health services access

Wark, Stuart; Hussain, Rafat; Muller, Arne; Ryan, Peta; Parmenter, Trevor


Background Increasing life expectancy for people with intellectual disability is resulting in greater need for end-of-life care services. However, limited knowledge is available regarding what barriers to accessing end-of-life care support are evident, particularly comparatively across rural and metropolitan locations. Methods Focus group interviews were undertaken with 35 direct-care staff from four rural and two metropolitan locations. A semistructured interview guide was used, with a...[Show more]

CollectionsANU Research Publications
Date published: 2017
Type: Journal article
Source: Journal of Applied Research in Intellectual Disabilities
DOI: 10.1111/jar.12408


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