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Whose story is it? Mental health consumer and carer views on carer participation in research

Morse, Alyssa Rhiannon; Forbes, Owen; Jones, Bethany; Gulliver, Amelia; Banfield, Michelle


Abstract BACKGROUND: Mental health carers contribute a unique set of perspectives and lived experiences to research; however, national research ethics guidelines do not specifically address the issues that affect informal carers as participants. OBJECTIVE: This study sought to explore Australian mental health consumer and carer views on the ethical conduct of research involving mental health carers. DESIGN: A public forum (n = 14; consumer = 5, carer = 9) and a subsequent series of...[Show more]

CollectionsANU Research Publications
Date published: 2019
Type: Journal article
Source: Health Expectations
DOI: 10.1111/hex.12954
Access Rights: Open Access


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