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Informed consent in biobank research: A deliberative approach to the debate

Secko, David; Preto, Nina; Niemeyer, Simon; Burgess, Mike


As acknowledged in the literature, public consultation related to biobanks has been largely oriented to assuring and informing rather than seeking considered input. In April and May of 2007, the authors participated in running a deliberative public engagement event in British Columbia, Canada, which sought to enhance public input related to the governance of biobanks. The topic of the event was 'Biobanking in British Columbia (BC)' and at the event a random-digit dialed demographically...[Show more]

CollectionsANU Research Publications
Date published: 2009
Type: Journal article
Source: Social Science and Medicine
DOI: 10.1016/j.socscimed.2008.11.020


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