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Normalising and planning for death in residential care: findings from a qualitative focus group study of a specialist palliative care intervention

Johnston, Nikki; Lovell, Clare; Liu, Wai-Man (Raymond); Chapman, Michael; Forbat, Liz

Description

Background: Improving access to palliative care for older adults living in residential care is recognised internationally as a pressing clinical need. The integration of specialist palliative care in residential care for older adults is not yet standard practice. Objective: This study aimed to understand the experience and impact of integrating a specialist palliative care model on residents, relatives and staff. Methods: Focus groups were held with staff (n=40) and relatives (n=17)....[Show more]

dc.contributor.authorJohnston, Nikki
dc.contributor.authorLovell, Clare
dc.contributor.authorLiu, Wai-Man (Raymond)
dc.contributor.authorChapman, Michael
dc.contributor.authorForbat, Liz
dc.date.accessioned2019-09-27T05:43:48Z
dc.identifier.citationJohnston N, Lovell C, Liu W, et al Normalising and planning for death in residential care: findings from a qualitative focus group study of a specialist palliative care intervention BMJ Supportive & Palliative Care 2019;9:e12.
dc.identifier.issn2045-4368
dc.identifier.urihttp://hdl.handle.net/1885/172039
dc.description.abstractBackground: Improving access to palliative care for older adults living in residential care is recognised internationally as a pressing clinical need. The integration of specialist palliative care in residential care for older adults is not yet standard practice. Objective: This study aimed to understand the experience and impact of integrating a specialist palliative care model on residents, relatives and staff. Methods: Focus groups were held with staff (n=40) and relatives (n=17). Thematic analysis was applied to the data. Results: Three major themes were identified. The intervention led to (1) normalising death and dying in these settings, (2) timely access to a palliative care specialist who was able to prescribe anticipatory medications aiding symptom management and unnecessary hospitalisations and (3) better decision-making and planned care for residents, which meant that staff and relatives were better informed about, and prepared for, the resident's likely trajectory. Conclusions: The intervention normalised death and dying and also underlined the important role that specialists play in providing staff education, timely access to medicines and advance care planning. The findings from our study, and the growing wealth of evidence integrating specialist palliative care in residential care for older adults, indicate a number of priorities for care providers, academics and policymakers. Further work on determining the role of primary and specialist palliative care services in residential care settings is needed to inform service delivery models.
dc.format.mimetypeapplication/pdf
dc.language.isoen_AU
dc.publisherBMJ Publishing Group Ltd
dc.rights© 2016 BMJ Publishing Group Limited
dc.sourceBMJ Supportive Palliative Care
dc.titleNormalising and planning for death in residential care: findings from a qualitative focus group study of a specialist palliative care intervention
dc.typeJournal article
local.description.notesImported from ARIES
local.identifier.citationvolumeOnline
dcterms.dateAccepted2016-07-14
dc.date.issued2016-08-03
local.identifier.absfor110399 - Clinical Sciences not elsewhere classified
local.identifier.absfor111799 - Public Health and Health Services not elsewhere classified
local.identifier.ariespublicationu1027566xPUB38
local.type.statusPublished Version
local.contributor.affiliationJohnston, Nikki, Clare Holland House
local.contributor.affiliationLovell, Clare, Clare Holland House
local.contributor.affiliationLiu, Wai-Man (Raymond), College of Business and Economics, ANU
local.contributor.affiliationChapman, Michael, Clare Holland House
local.contributor.affiliationForbat, Elizabeth, Calvary Centre for Palliative Care Research
local.description.embargo2037-12-31
local.bibliographicCitation.startpage1
local.bibliographicCitation.lastpage7
local.identifier.doi10.1136/bmjspcare-2016-001127
dc.date.updated2020-07-05T08:17:17Z
local.identifier.scopusID2-s2.0-85058440797
local.identifier.thomsonIDWOS:000471863100012
CollectionsANU Research Publications

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