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A Relational Approach to Genetic Counseling for Hereditary Breast and Ovarian Cancer

Forbes Shepherd, Rowan; Kayali Browne, Tamara; Warwick, Linda

Description

Ethical issues arise for genetic counselors when a client fails to disclose a genetic diagnosis of hereditary disease to family: they must consider the rights of the individual client to privacy and confidentiality as well as the rights of the family to know their genetic risk. Although considerable work has addressed issues of non-disclosure from the client's perspective, there is a lack of qualitative research into how genetic counselors address this issue in practice. In this study, a...[Show more]

dc.contributor.authorForbes Shepherd, Rowan
dc.contributor.authorKayali Browne, Tamara
dc.contributor.authorWarwick, Linda
dc.date.accessioned2019-04-30T23:36:15Z
dc.identifier.issn1059-7700
dc.identifier.urihttp://hdl.handle.net/1885/160796
dc.description.abstractEthical issues arise for genetic counselors when a client fails to disclose a genetic diagnosis of hereditary disease to family: they must consider the rights of the individual client to privacy and confidentiality as well as the rights of the family to know their genetic risk. Although considerable work has addressed issues of non-disclosure from the client's perspective, there is a lack of qualitative research into how genetic counselors address this issue in practice. In this study, a qualitative approach was taken to investigate whether genetic counselors in Australia use a relational approach to encourage the disclosure of genetic information from hereditary breast and ovarian cancer (HBOC) clients among family members; and if so, how they use it. Semi-structured qualitative interviews were conducted with 16 genetic counselors from selected states across Australia. Data collection and analysis were guided by a basic iterative approach incorporating a hybrid methodology to thematic analysis. The findings provide indicative evidence of genetic counselors employing a relational approach in three escalating stages--covert, overt and authoritative--to encourage the disclosure of genetic information. The findings lend credence to the notion that genetic counselors envision a form of relational autonomy for their clients in the context of sharing genetic information, and they depart from individualistic conceptions of care/solely client-centered counseling when addressing the needs of other family members to know their genetic status.
dc.format.mimetypeapplication/pdf
dc.language.isoen_AU
dc.publisherKluwer Academic/Plenum Publishers
dc.rights© National Society of Genetic Counselors, Inc. 2016
dc.sourceJournal of Genetic Counseling
dc.titleA Relational Approach to Genetic Counseling for Hereditary Breast and Ovarian Cancer
dc.typeJournal article
local.description.notesImported from ARIES
local.identifier.citationvolume26
dc.date.issued2017
local.identifier.absfor111710 - Health Counselling
local.identifier.ariespublicationu4485658xPUB845
local.publisher.urlhttps://link.springer.com
local.type.statusPublished Version
local.contributor.affiliationForbes Shepherd, Rowan, College of Science, ANU
local.contributor.affiliationKayali Browne, Tamara, College of Science, ANU
local.contributor.affiliationWarwick, Linda, ACT Health
local.description.embargo2037-12-31
local.bibliographicCitation.issue2
local.bibliographicCitation.startpage283
local.bibliographicCitation.lastpage299
local.identifier.doi10.1007/s10897-016-0022-2
local.identifier.absseo970111 - Expanding Knowledge in the Medical and Health Sciences
dc.date.updated2019-03-12T07:36:05Z
local.identifier.scopusID2-s2.0-84991806399
local.identifier.thomsonID000399163800013
CollectionsANU Research Publications

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