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The MacNew heart disease health-related quality of life instrument: a summary

Lim, Lynette; Hofer, Scott; Guyatt, Gordon; Oldridge, Neil

Description

BACKGROUND The measurement of health, the effects of disease, and the impact of health care include not only an indication of changes in disease frequency and severity but also an estimate of patients' perception of health status before and after treatment. One of the more important developments in health care in the past decade may be the recognition that the patient's perspective is as legitimate and valid as the clinician's in monitoring health care outcomes. This has lead to the...[Show more]

dc.contributor.authorLim, Lynette
dc.contributor.authorHofer, Scott
dc.contributor.authorGuyatt, Gordon
dc.contributor.authorOldridge, Neil
dc.date.accessioned2009-04-22T02:20:11Z
dc.date.accessioned2010-12-20T06:03:27Z
dc.date.available2009-04-22T02:20:11Z
dc.date.available2010-12-20T06:03:27Z
dc.identifier.citationHealth and Quality of Life Outcomes 2.3 (2004)
dc.identifier.issn1477-7525
dc.identifier.urihttp://hdl.handle.net/10440/108
dc.identifier.urihttp://digitalcollections.anu.edu.au/handle/10440/108
dc.description.abstractBACKGROUND The measurement of health, the effects of disease, and the impact of health care include not only an indication of changes in disease frequency and severity but also an estimate of patients' perception of health status before and after treatment. One of the more important developments in health care in the past decade may be the recognition that the patient's perspective is as legitimate and valid as the clinician's in monitoring health care outcomes. This has lead to the development of instruments to quantify the patients' perception of their health status before and after treatment. METHODS We review evidence supporting the measurement properties of the MacNew Heart Disease Health-related Quality of Life [MacNew] Questionnaire which was designed to evaluate how daily activities and physical, emotional, and social functioning are affected by coronary heart disease and its treatment. RESULTS Reliability was demonstrated by using internal consistency and the intraclass correlation coefficients for the three domains in the Dutch, English, Farsi, German, and Spanish versions of the MacNew. With internal consistency and intraclass correlation coefficients =>0.73, reliability is high. Validity of the MacNew was examined with factor analysis and three core underlying factors, physical, emotional, and social, were identified, explaining 63.0 – 66.5% of the observed variance and replicated in the translations with psychometric data. Construct validity of the MacNew was further demonstrated by extensive substantiation of the logical relationships, defined a priori, between items and other comparison tools. The MacNew is responsive and sensitive to changes in HRQL following various interventions for patients with heart disease with 11 of 13 effect size statistics >0.80. Taking an average of 10 minutes or less to complete, the respondent-burden for the MacNew is low and its acceptability is demonstrated by response rates of over 90%. Normative data are available for patients with myocardial infarction, angina, and heart failure in the English version. CONCLUSION The MacNew may be a valuable tool for assessing and evaluating health related quality of life in patients with heart disease.
dc.format8 pages
dc.publisherOpen Access
dc.rightshttp://www.sherpa.ac.uk/romeo/search.php "Author can archive pre-print (ie pre-refereeing) …[and] post-print (ie final draft post-refereeing) … [and] publisher's version/PDF" - from SHERPA/RoMEO site (as at 26/02/10)
dc.sourceHealth and Quality of Life Outcomes
dc.source.urihttp://www.hqlo.com/content/pdf/1477-7525-2-3.pdf
dc.source.urihttp://www.hqlo.com/content/2/1/3
dc.subjectKeywords: angina pectoris; correlation coefficient; daily life activity; emotionality; factorial analysis; health status; heart failure; heart infarction; human; ischemic heart disease; medical assessment; patient attitude; physical capacity; psychometry; quality o
dc.titleThe MacNew heart disease health-related quality of life instrument: a summary
dc.typeJournal article
local.description.refereedYes
local.identifier.citationvolume2
dcterms.dateAccepted2004-01-08
dc.date.issued2004-01-08
local.identifier.absfor111711
local.identifier.ariespublicationMigratedxPub18341
local.type.statusPublished Version
local.contributor.affiliationLim, Lynette, ANU College of Medicine & Health Sciences, National Centre for Epidemiology and Population Health
local.contributor.affiliationHofer, Scott, Pennsylvania State University
local.contributor.affiliationGuyatt, Gordon, McMaster University, Canada
local.contributor.affiliationOldridge, Neil, Regenstrief Institute for Health Care, USA
local.bibliographicCitation.startpage2
local.identifier.doi10.1186/1477-7525-2-3
dc.date.updated2015-12-12T08:38:43Z
local.identifier.scopusID2-s2.0-4243105593
CollectionsANU Research Publications

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