Partnership between a consumer-led mental health research network and a large mental health research organisation: an Australian mixed methods case study
| dc.contributor.author | Banfield, Michelle | en |
| dc.contributor.author | Berry, Bridget | en |
| dc.contributor.author | Rose, Grenville | en |
| dc.contributor.author | Heffernan, Tim | en |
| dc.contributor.author | Schweizer, Richard | en |
| dc.contributor.author | Aadam, Bani | en |
| dc.contributor.author | Gill, Katherine | en |
| dc.contributor.author | Foxlewin, Bradley | en |
| dc.contributor.author | Schaecken, Peter | en |
| dc.contributor.author | Trias, Angelica | en |
| dc.date.accessioned | 2025-05-23T18:25:15Z | |
| dc.date.available | 2025-05-23T18:25:15Z | |
| dc.date.issued | 2024 | en |
| dc.description.abstract | Aim: This paper presents a case study review of an Australian research partnership between an independent mental health lived experience-led research network and an academic organisation established for the research and treatment of disorders of the brain and mind. The aim of the study was to explore the principles and practical requirements needed for a successful partnership that promotes inclusive research practices and power sharing and provide a framework to improve the operationalization of future similar partnerships. Methods: This study was led and conducted by lived experience researchers. We used a mixed-method approach to data collection for data triangulation. An environmental scan of peer-reviewed and grey literature on mental health research partnerships was conducted, followed by a three-part data collection with members of both organisations. Data collection comprised an online survey, in-depth interviews, and a roundtable discussion to integrate findings and formulate recommendations. Results and Conclusion: This case study explores and describes a missed opportunity of a consumer led mental health research organisation to work successfully with an established mental health research organisation. Poor communication and unclear processes led to unmet expectations on both sides. Findings suggest the use of reflective practice by team members of both partner organisations may have been helpful in identifying further improvements to inclusive research practice, empowering consumers in inclusive mental health research. | en |
| dc.description.sponsorship | We would like to thank all participants who generously gave their time and expertise to this project. We would like to specifically thank Tegan Cox and Harrison Shtein of the Brain and Mind Centre, University of Sydney for their kindness, help, and support on this project Funding for this review was provided by the Mental Health Commission of NSW. | en |
| dc.description.status | Peer-reviewed | en |
| dc.identifier.other | ORCID:/0000-0002-3024-1687/work/184099941 | en |
| dc.identifier.scopus | 85208732632 | en |
| dc.identifier.uri | http://www.scopus.com/inward/record.url?scp=85208732632&partnerID=8YFLogxK | en |
| dc.identifier.uri | https://hdl.handle.net/1885/733752899 | |
| dc.language.iso | en | en |
| dc.rights | Publisher Copyright: © The Author(s) 2024. | en |
| dc.source | Research Involvement and Engagement | en |
| dc.subject | Inclusive practice | en |
| dc.subject | Inclusive research | en |
| dc.subject | Lived experience research | en |
| dc.subject | Patient and public involvement | en |
| dc.subject | Public/user participation | en |
| dc.title | Partnership between a consumer-led mental health research network and a large mental health research organisation: an Australian mixed methods case study | en |
| dc.type | Journal article | en |
| dspace.entity.type | Publication | en |
| local.contributor.affiliation | Banfield, Michelle; Centre for Mental Health Research, National Centre for Epidemiology and Population Health, ANU College of Law, Governance and Policy, The Australian National University | en |
| local.contributor.affiliation | Trias, Angelica; Centre for Mental Health Research, National Centre for Epidemiology and Population Health, ANU College of Law, Governance and Policy, The Australian National University | en |
| local.identifier.citationvolume | 10 | en |
| local.identifier.doi | 10.1186/s40900-024-00645-4 | en |
| local.identifier.pure | 5be15c0c-47c6-450c-9587-73880bb236dd | en |
| local.identifier.url | https://www.scopus.com/pages/publications/85208732632 | en |
| local.type.status | Published | en |